COVID-19, ME/CFS and POST-COVID (LONG-HAULERS)
GENERAL NEW ZEALAND UPDATES
Unite against COVID-19 website or Facebook
We recommend that all New Zealanders continue to use the NZ COVID-19 tracing app
Curated resources about long COVID for patients and health professionals from the National Institute for Health Innovation, Auckland University.
Ministry of Health guidelines for Long Covid
COVID-19 for people with ME/CFS
ME Association UK has a 5 page leaflet on Covid-19, Covid Vaccine, ME/CFS and LongCovid to download
Emerge Australia has an excellent list of resources about Coronavirus and ME
#MEAction has a great list of resources for pwME, including recommendations from various ME expert sources about safety of the vaccines for pwME.
Also see the ‘Covid-19 Vaccines and pwME’ section on our Resources for People with ME.
POST-COVID FATIGUE SYNDROMES
Recommendations for the recognition, diagnosis, and management of long covid: A Delphi study, British Journal of General Practice, August 2021
Related GP Online News article - GPs with long COVID help develop new clinical guidance on the condition
Post-Covid Fatigue Syndromes and Post-Covid ME/CFS, 40-page guide from The ME Association, UK
Clinical Case Definition of post COVID-19 condition by a Delphi consensus, World Health Organisation, Oct 2021
Long Covid, Post Viral Fatigue Syndrome and ME/CFS, 8 minute video from Broken Battery - see below.
ONLINE SUPPORT GROUPS FOR LONG-COVID and those with Covid
NEW ZEALAND MEDIA ARTICLES
Also see our list of NZ News Stories about ME/CFS.
The coming wave of long Covid (Justin Giovannetti, The Spinoff, 16 Mar 2022)
Could NZ limit long Covid? - Expert Reaction (Science Media Centre NZ, 9 Mar 2022)
Covid 19 Omicron outbreak: Long Covid - 1 in 10 seriously sick have long-term symptoms (Emma Russell, NZ Herald, 12 Feb 2022)
The narrative of Omicron as a 'milder' variant is dangerous, given what we know about long Covid, experts warn (Katie Kenny, Stuff, 16 Jan)
Urgent funding needed for Long Covid (Dr Sarah Rhodes & Dr Margot Skinner, Newsroom, 3 Jan 2022)
Similarities between long-haul Covid and ME Chronic Fatigue Syndrome new research (Nine To Noon, Radio NZ, 16 Dec 2021)
Is Long Covid a new type of chronic fatigue syndrome? (Michael Hall, Radio NZ, 27 Nov 2021)
The Known Unknowns (Rebekah White, NZ Geographic, Nov 2021)
Concern long Covid will soon burden health system (Katie Harris, NZ Herald, Nov 2021)
Long Covid clinics desperately needed in New Zealand, experts say (Nicholas Jones, NZ Herald, 19 Oct 2021)
Long Covid gains official recognition – Expert Reaction (Science Media Centre, Oct 2021)
Counting COVID antibodies in Aotearoa (Radio NZ, Afternoons with Jesse Mulligan, Aug 2021)
Long Covid short on research (Radio NZ, The Detail, August 2021)
Getting to grips with Covid’s longtail of suffering (Peter Griffin, Stuff, 3 May 2021)
Long Covid in New Zealand - Expert Q&A (Science Media Centre, April 2021)
David Putrino: Covid’s “Long Haulers” (Radio NZ, Saturday Morning - Kim Hill, April 2021)
New Zealand COVID-19 long-haulers still suffering long-term effects a year on (TV3 Newshub, Lucy Warhurst, Feb 2021)
Covid long haulers fighting to be heard (RNZ, First Up, Matthew Theunissen, Feb 2021)
Covid 19 coronavirus: 'Long haulers' speak of long-term virus effects (NZ Herald, Matthew Theunissen, Feb 2021)
Long-term fatigue dubbed the 'hidden toll' of Covid-19 (1 News, Thomas Mead, Sep 2020)
Covid-19's long shadow: 'The light at the end of the tunnel just isn't there' (Radio NZ, Louise Thornley, Sep 2020)
Sick and tired of Covid-19: The 'recovered' patients who aren't getting better (Radio NZ, Louise Thornley, Sep 2020)
Covid 19 coronavirus: Kiwi expert on Covid survivors affected by ME (NZ Herald /Otago Daily Times, John Gibb, Aug 2020)
INTERNATIONAL ARTICLES
The Psychologisation of Illness | Why Long Covid (and ME/CFS) Are Not 'Just Anxiety' (Youtube, Gez Medinger and Dr Asad Khan, August 2021)
What If You Never Get Better From Covid-19? (The New York Times Magazine, Moises Velasquez-Manoff, Jan 2021)
We're about to see a wave of long Covid. When will ministers take it seriously? (The Guardian, George Monbiot, Jan 2021)