ME/CFS is one of the most misunderstood, misdiagnosed and stigmatised diseases of our time

ME/CFS is a defined illness but there is no diagnostic test yet

25% of people with ME/CFS are bedbound or housebound

ME/CFS is the most common cause of long-term school absence

ME/CFS has the lowest quality of life compared to cancer, schizophrenia, depression, stroke and heart disease

Around 8% of people with ME/CFS commit suicide

Over 90% of people with ME/CFS do not regain their pre-disease level of functioning

On average, people with ME/CFS can't walk as far as those with heart failure or those awaiting lung transplant

Globally, health-care providers usually lack essential knowledge for diagnosis and treatment of ME/CFS

600 years of ME/CFS research funding equals one year of HIV/AIDS funding

ME/CFS affects more women than men, in an approximate ratio of 4:1

The NZ health system has no pathway for supporting people with ME/CFS